Hospitalization Guidelines for

Ostomy Patients

 

Contents

·        Hospitalization Guidelines for Ostomy Patients

·        Care During Cancer Therapy

·        Herbs & Surgery

·        Surgery for Problem Stomas

·        Do You Get All Your Benefits?

 

Hospitalization Guidelines for Ostomy Patients

By  Dr. Lindsay Bard

 

It is important an ostomate knows how he/she should be handled differently than a non-ostomate who enters the hospital.   It's up to you.   It is very important to communicate to medical personnel who take care of you, including every physician that treats you, that you have an ostomy, and what type of ostomy you have.  Here are some rules to help you cover the details:

 

Rule I ... The Cardinal Rule!

 

If you feel something is being done or going to be done to you that might be harmful, refuse the procedure.  Then explain to the personnel, especially your physician.   They will then decide with you if the procedure will actually be in your best interests.

 

Rule 2 ... Supplies

 

Bring your own supplies to the hospital.  Never assume the hospital will have the exact pouches or irrigation systems you use.   Most hospitals have some supplies available.   These are used for emergency situations.

 

Rule 3 ... Laxatives & Irrigations

 

Follow the points below concerning laxatives or irrigation practices, according to which type of  ostomy you have.   Medical personnel often assume all stomas are colostomies.   But, of course, practices vary among the various types of ostomies.

 

·        A transverse colostomy cannot be managed by daily irrigations.  The only colostomy that can be managed by irrigations is the descending or sigmoid colostomy.  But, sigmoid or low colostomies do not have to be irrigated in order for them to function; many sigmoid colostomates prefer letting the stoma work as nature dictates.  If you do not irrigate your colostomy, let the fact be known to your caregivers.  If your physician orders your bowel cleared, irrigate your own colostomy; do not rely on others.  There is a strong possibility that those caring for you will not know how to perform an irrigation.

 

·        Bring your own irrigation set to the hospital.

 

·        If you have an ileostomy or urinary diversion ostomy, never allow a stomal irrigation as a

surgical or x-ray  preparation.

 

Remember that laxatives or cathartics by mouth can be troublesome for colostomates.  For ileostomates, they can be disastrous-- ileostomates should always refuse them.   An ileostomate will have diarrhea, may become dehydrated, and go into electrolyte imbalance.  The only prep an ileostomate needs is to stop eating and drinking by midnight the night before surgery.  An IV should

be started the night before surgery to prevent dehydration.

 

Rule 4 ... X-rays

 

X-rays present special problems for ostomates, again, differently managed according to ostomy type:

 

·  Colostomates must never allow radiology technicians to introduce barium into your stoma with a rectal tube.   It is too large and rigid.   Take your irrigation set with you to x-ray and

explain to the technicians that a soft rubber or plastic catheter F#26 or 28 should be used to enter the stoma.  Put a transparent bag on before going to x-ray.   Have the technician or yourself place the rubber or plastic catheter into your stoma through the clear plastic bag. When enough barium is in your large bowel for the x-ray, the rubber or plastic catheter can be withdrawn and the open end of the bag closed.  The bag will then collect the barium as it is expelled and can be emptied neatly after the procedure.  Once the x-rays are completed, irrigate normally to clean the remaining barium from your colon.  This will prevent having to take laxatives by mouth after the procedure.

 

·        An ileostomate may drink barium for an x-ray procedure, but never allow anyone to put barium into your ostomy.

 

·        A urostomy patient can have normal GI x-rays without any problems.  Never allow anyone to put barium in your stoma.   At times, dye may be injected through a soft plastic catheter into a urostomy for retrograde ureter and renal studies, often called an ileo-loop study.  The same study may be performed on a urostomy patient with a Koch pouch.  The dye will be injected via a large syringe; this can be a very painful procedure, if the dye is not injected very slowly.  Even 5Occ's will create a great deal of pressure in the ureters and kidneys, if injected rapidly.  Remember to request that the injection be done slowly.

 

·        For any ostomate who wears a two-piece appliance:  you may remove the pouch just prior to the insertion of the catheter, and replace the pouch after the procedure is completed.  If you wear a one-piece appliance, bring another with you to the x-ray department to replace the one removed for the procedure.  In the event you are incapacitated, and cannot use your hands to replace your appliance, request that an ET nurse in the hospital be available to assist you.   The ET nurse will be able to replace the appliance for you before you leave the x-ray department.

 

Rule 5 ... Instructions

 

Bring with you to the hospital two copies of instructions for changing and irrigating your appliance. Give one to your nurse for your chart, and keep one with your supplies at bedside.  If you bring supplies that are not disposable, mark them do not dispose.   Otherwise, you may lose them.

 

Rule 6 ... Communicate!

 

Again, let me stress that you must communicate with the hospital personnel who take care of you. You will have a better hospital stay, and they will have an easier time treating you.

 

Care During Cancer Therapy

By Kathryn Earhart, RN, CETN; Vicki Mueller, RN, MS, CETN; Denis Murray, RN, CETN

Reprinted through permission of WOCN Journal.  This article was originally intended for nurses treating ostomy patients.

 

     Living with an ostomy—whether it is newly created or of long-standing—presents a number of daily challenges.  An oncology diagnosis may necessitate radiation and/or chemotherapy in addition to stoma surgery.  Adjuvant therapy may be required immediately post-operatively, based on tissues pathology or tumor staging, while tumor recurrence can initiate further oncology treatment.  Notable stoma care challenges can result from cancer therapy or tumor progression.  The ET nurse can provide education and evaluations to minimize any difficulties that may arise.

     Steps that the ET nurse can take once chemotherapy or radiation have been prescribed include the following:

 

·        Schedule an appointment to examine the stoma and peristomal skin, and review the patient's stoma care procedure to establish a baseline.

·        Discontinue the use of any appliance with metal in the faceplate or zinc oxide, either of which can interfere with radiation therapy.  The appliance should be emptied and moved out of the radiation field if possible to prevent a bolus effect.

·        Discontinue stoma dilatations or colostomy irrigation during treatment.  Infections may occur in immuno-suppressed individuals through traumatized mucosal surfaces.  Additionally, diarrhea is a common side-effect and negates successful colostomy irrigation.

·        Discontinue the use of soaps, solvents, ointments or sealants near or in the area receiving radiation if any skin reactions are noted.

·        Teach the patient how to gently remove the appliance.  Gentle cleansing of the stoma and surrounding skin with warm water is allowed.  Pat dry and avoid any vigorous rubbing or toweling.  A hairdryer set on cool may be used. 

·        Skin reactions related to either radiation or chemotherapy can occur.  Instruct the patient to report any changes in the stoma or peristomal skin to the medical staff.

·        Neutropenic patients—those with a white blood cell count below 2000—should be fitted with a clean, disposable pouching system.  At times when such patients are dangerously suppressed, some centers utilize a sterile pouching system.  A sterile urine culture may be required for the septic urostomy patient.  The patient's usual pouching system can be resumed when his/her white blood cells have normalized.

·        Stomal edema—swelling from an accumulation of an excessive amount of watery fluid in cells or tissues, ulcerations, and less frequently necrosis—death of a portion of tissue resulting from irreversible damage—can be observed.  An enlarged appliance opening may be needed to protect the stoma from trauma.  Stomal edema can result from direct contact with the mucosal lining.  Any stomal ulcers that develop require gentle cleansing and should resolve quickly when treatment ceases.

·        Counsel patients to monitor fluid intake and output if nausea, vomiting or diarrhea develop.  The ileostomy patient is particularly at risk of dehydration and medical intervention may be required to treat symptoms and/or dehydration.

·        Constipation can plaque certain colostomy patients taking pain medication or some chemotherapy drugs or with tumor progressions.  Caution patients to obtain medical/nursing  instruction if their bowels have not moved within 48 hours.

 

     Other, less common complications of the oncology patient include hemorrhage due to suppressed blood platelets or peristomal varices—caput medusa (veins radiating from around the stoma).  Peristomal varices present as a bluish or purple discoloration of the peristomal skin that blanches when pressed.  The skin remains intact, though upon initial examination it appears damaged.

     This condition of the liver is related to metastatic disease—shifting from one part of the body to another, hepatitis  and cirrhosis resulting in portal hypertension—a vein that is obstructed in the liver.  The dangerous stomal complication is hemorrhage at the Mucocutaneous junction—where the stoma meets the abdominal skin.  To minimize the risk of hemorrhage, the appliance opening should not come into contact with the stoma.  Enlarge the opening of the barrier ¼" larger than the stoma.  Soft barrier rings or stoma pastes can minimize rubbing.  Gentle stoma and peristomal skin cleansing is imperative, as is avoiding aggressive adhesives or excessive pressure from belts.

     Pressure from a soft cloth or gauze can be applied to bleeding sites.  If the bleeding does not stop, the patient should be instructed to seek medical assistance.  Topical treatment includes: cautery, suturing; application of homeostatic agents.  Surgical treatment and blood transfusions may be indicated.

     Candidiasis—fungus or yeast infections—occurs more easily in the immuno-suppressed patient.  A white coating appears on the stoma and can be scraped off.  Peristomal yeast infections can be seen as erythematous skin—redness of the skin due to capillary dilatation—with scattered satellite lesions that may cause pruritis—itching.  If the culture is positive, topical anti-fungal powders or creams can be effective.  However, immuno-suppressed patients may require systemic anti-fungal therapy.

      Drug-induced skin reactions are a common side effect of chemotherapy agents.  Drugs reported to cause skin reactions include 5-fluorouricil, bleomycin, methotrexate, doxirubicin, actinomycin, taxol, taxotere, thiotepa and melphalan.  Gentle appliance removal and cleansing are indicated.  A non-adhesive appliance using a belt and silicone or karaya rings may be necessary during acute skin reactions.  The skin will improve post-treatment; however, recall skin reactions have been noted during active radiation treatment.

     There is the potential for tumor recurrence in the stoma mucosa or peristomal skin, the 5-10 per cent of malignant recurrences appearing cutaneously—at the base of the stoma.

     Direct examination and biopsy can confirm tumor development.  Treatment may or may not be indicated.  Gentle removal and cleansing, plus the use of non-adherent and absorbent dressings over friable—a dry and brittle culture falling into powder when touched—peristomal tumors, will reduce trauma.  Appliance openings may have to be enlarged due to stomal tumors.  Surgical resection or radiation may be necessary if there is a risk of stomal obstruction by the tumor.

     Preventive stoma care, education and evaluation can minimize the side-effects of oncology-related treatment.  With the increasing number of therapies for cancer, more stoma patients are undergoing such treatments.  The role of the ET nurse as a member of the oncology treatment team is therefore increasingly important.

 

 

New recommendations proposed for safe use of herbal medications by patients having surgery

 

A new study gives patients and their physicians specific recommendations for when to stop use of herbal medications prior to surgery. In the July 11, 2001, issue of JAMA, three University of Chicago physicians assess the interactions between herbs, anesthesia and surgery and suggest ways to reduce the associated risks.

 

Their goal is to provide a framework for physicians "practicing in the current environment of widespread herbal use" and to encourage patients and physicians to discuss the topic openly and in detail prior to surgery.

 

"While most of these substances appear to be safe for healthy people, for surgical patients they can affect sedation, pain control, bleeding, heart function, metabolism, immunity and recovery in ways that we are just beginning to understand," said study author Chun-Su Yuan, M.D., Ph.D., assistant professor of anesthesia and a member of the Tang Center for Herbal Medicine Research at the University of Chicago.

 

Studies suggest that as many as one-third of pre-surgical patients take herbal medications, but that many of those patients fail to disclose herbal use during pre-operative assessment, even when prompted. Further, physicians often are unsure what to do with the information.

 

"Physicians need to specifically ask patients about herbal medication use," said co-author Jonathan Moss, M.D., PhD, professor of anesthesia and critical care at the University.  "Many patients think of herbal medications not as supplements but as drugs. Other patients may not want to admit to their use to physicians. But in order to optimize patient safety and pain control during and after surgery, we need to know what herbal as well as over-the-counter or prescription drugs each patient takes."

 

Despite their reputation as "mild" or "natural," herbal medications can speed up or slow down the heart rate, inhibit blood clotting, alter the immune system and change the effects and duration of anesthesia.

 

The American Society of Anesthesiologists has recognized the potential for adverse reactions and suggests that patients stop taking all herbal medications two weeks before surgery. This advice may be difficult to implement, however, since most preoperative evaluations occur only a few days prior to surgery.

 

So the Chicago researchers began to search for more targeted recommendations.  Although there are more than 1,500 herbal medications sold in the United States, they focused on the eight most common herbs -- echinacea, ephedra, garlic, ginko, ginseng, kava, St. John's wort, and valerian -- which account for 50 percent of all single-herb preparations sold.

 

The authors found, first of all, a shortage of clinically relevant information. There were no randomized, controlled trials that evaluated the effects of prior herbal medicine use on the period immediately before, during and after surgery.

 

However, by reviewing the biology of the compounds as well as all studies, case reports, and reviews addressing the safety and pharmacological effects of these eight medications they came up with the following recommendations:

 

Effects of herbal medications and recommendations
for discontinuation of use before surgery

Herb
(other names)

Relevant effects

Perioperative concerns

Recommendations

Echinacea

Boosts immunity

Allergic reactions, impairs immune suppressive drugs, can cause
immune suppression when taken
long-term, could impair wound
healing.

Discontinue as far in advance as possible, especially for transplant patients or those with liver dysfunction.

Ephedra (ma huang)

Increases heart rate, increases blood pressure

Risk of heart attack, arrhythmias, stroke, interaction with other drugs, kidney stones.

Discontinue at least 24 hours before surgery.

Garlic (ajo)

Prevents clotting

Risk of bleeding, especially when combined with other drugs that inhibit clotting.

Discontinue at least 7 days before surgery.

Ginko (duck foot, maidenhair, silver apricot)

Prevents clotting

Risk of bleeding, especially when combined with other drugs that inhibit clotting.

Discontinue at least 36 hours before surgery.

Ginseng

Lowers blood glucose, inhibits clotting,

Lowers blood-sugar levels. Increases risk of bleeding. Interferes with warfarin (an anti-clotting drug).

Discontinue at least 7 days before surgery.

Kava (kawa, awa, intoxicating pepper)

Sedates, decreases anxiety

May increase sedative effects of anesthesia. Risks of addiction, tolerance and withdrawal unknown.

Discontinue at least 24 hours before surgery.

St. John's wort (amber, goatweed, Hypericum, klamatheweed)

Inhibits re-uptake of neuro-transmitters (similar to Prozac)

Alters metabolisms of other drugs such as cyclosporin (for transplant patients), warfarin, steroids, protease inhibitors (vs. HIV). May interfere with many other drugs.

Discontinue at least 5 days before surgery.

Valerian

Sedates

Could increase effects of sedatives. Long-term use could increase the amount of anesthesia needed. Withdrawal symptoms resemble Valium addiction.

If possible, taper dose weeks before surgery. If not, continue use until surgery. Treat withdrawal symptoms with benzodiazepines.

 

The authors caution that even this study has many gaps. Because they are regulated as dietary supplements rather than medications, herbal medications do not undergo the safety and efficacy testing required for new drugs. Further, unlike pharmaceuticals, there is no mechanism to track adverse events caused by herbs.

 

Herbal medications are even more difficult to study because the ingredients tend to vary enormously from maker to maker and even lot to lot. Potency and purity are inconsistent.  Product labels are not always accurate.

 

In fact, Yuan, who studies the effects of ginseng, has had to work closely with a Wisconsin supplier to obtain consistent supplies of that herb for his research.  Many physicians remain unaware of potential risks associated with herbal medications or how they interact with other drugs, note the authors. Medical schools are just beginning to teach students about herbal preparations and to study their effects systematically.

 

"If patients use them--and we know they do--then we need to know what to expect, how to prevent problems, especially during surgery, and how to respond when something goes wrong." added co-author Michael K. Ang-Lee, M.D., senior anesthesia resident at the University of Chicago.

 

Surgery for Problem Stomas

By Arthur J. Vayer, Jr., M.D.

 

     A significant number of ostomates have a problem stoma that may need surgical correction.  In statistics published for a United Ostomy Association survey, 15% of ileostomates and 10% of colostomates require surgical intervention for complications associated with the stoma.

     The first, easiest and best step in treating the problem stoma is to create a stoma correctly.  The foundations of stoma construction are similar to the old real estate saying:  Location, location, location.

     --Location so that the ostomate may properly care for the stoma.  Skin folds and irregular skin surfaces are avoided, if possible, and the stoma should be visible to the patient, avoiding placement too low on the belly wall.  Placement should also pay attention to wardrobe considerations, such as the belt line.

     --Location through the rectus abdominus muscle—the one you use for sit-ups.  Placing the stoma through the rectus abdominus muscle takes advantage of the strongest muscle of the belly wall and minimizes the chance of developing a hernia.

     --Location of the “spout” above the skin.  An ileostomy should have a long spout to keep the caustic small bowel effluent off the skin, while a urostomy or colostomy should have a smaller sized “bud”.

     Despite proper construction, any of several complications can develop that may require surgical correction. 

     Retraction of the stoma is apparent as the “budding” disappears.  The most common causes of stoma retraction are technical problems at stoma creation and port-operative weight gain.  Stoma retractions will occur in less than five percent of all ostomates.  Therapy for stoma retraction can involve weight loss if weight gain is the culprit. 

     Often this approach is not practical, since many patients had weight loss from their disease—notably, Crohn’s Disease and ulcerative colitis—and go back to their normal weight after the disease is removed.  Most commonly, the stoma will need to be revised surgically.  An intra-abdominal procedure is needed, thereby, making the correction of retraction a “big deal”.

       Stricture of the stoma will first show up as difficulty with evacuation at the stoma and possibly crampy abdominal pain.  The combination of a tight stricture and hard stool can result in impaction, when the stool truly blocks the stoma and cannot come out.  Stoma strictures occur in less than five percent of all ostomates.

     The stricture is made up of scar tissue and can be at the level of the skin or fascia—the tough muscle covering.  For skin strictures, the repair is simple and can be done as a local procedure.  Fascia level strictures may require relocation of the stoma.

     Abscesses or fistulas are relatively common problems after surgery because the bowel is a “contaminated” organ.  Patients with Crohn’s Disease are the most prone to this complication, since fistulas tend to develop in Crohn’s Disease anyway.  Stoma abscess or fistula will occur in less than 10% of all ostomates.

     If such an infection occurs, it needs to be drained.  Drainage of the infection should be done either right next to the stoma or well away from the stoma to allow proper application of the ostomy appliance.  Complicated infections may require stoma relocation and/or revision.

     Prolapse of the stoma is evident as the bowel telescopes out from the body, resembling an elephant’s trunk.  Prolapse will in occur in less than 10% of all ostomates.  If a prolapse is bothersome or causes symptoms, the stoma will need to be revised.  If there is no other complication, the surgeon can simply excise the prolapsing length of the bowel and reform the stoma without relocation.  Stomas with multiple problems might best be served by stoma relocation. 

     A stomal hernia presents itself as a bulge—either next to the stoma or around the stoma—and results from a defect in the abdominal wall that allows the intra-abdominal contents to slide next to the stoma.  A hernia may be incarcerated or “stuck”.  If a loop of bowel gets stuck in the hernia, it can present itself as a bowel obstruction with: crampy abdominal pain, nausea and vomiting.  This scenario is a surgical emergency.

     A stomal hernia is the most common problem to develop and will occur in about 15% of all colostomates.  This is double the rate of occurrence of that of ileostomates or urostomates.  There is always a chance for obstruction with a hernia, so ostomates with a hernia need to be diligent about watching for signs of obstruction or worsening symptoms.  If a hernia is symptomatic or causes problems with the stoma appliance, it should be repaired.  If the hernia is small, it can be repaired locally, preserving the location of the stoma.  If the hernia is large or is associated with another problem, the stoma should be relocated.

       While the great majority of ostomates will never have trouble with their stomas, some will need surgical correction of problems.  The key to successful management of a stoma is to simply “know your stoma” and investigates when things aren’t right.  As always, if you have any questions regarding your stoma, you can ask your doctor or an ostomy nurse.  Remember ... have an ostomy check-up every few years by your ET nurse.

 

Do You Get All Your Benefits?

Adapted from UOA Advocacy Internet Site

 

     More than 5,000,000 seniors are currently missing out on hundreds of state and federal benefits programs.  A Web site by the National Council on the Aging may help.

     www.BenefitsCheckUp.org is a pioneer in helping seniors find the correct benefits programs to meet their needs.  The site contains fast, free and confidential tools to determine eligibility for nearly 1,000 unique state and federal programs, and detailed instructions on how to apply for them.

     More than 3,000,000 seniors are eligible for—but are not receiving—food stamps; 1,200,000 elderly are eligible for—but do not participate in—the Supplemental Security Income Program; and as many as 3,000,000 eligible seniors do not participate in Medicaid.  Most states even have underutilized pharmacy assistance programs.

     Seniors can fill out a confidential questionnaire at www.BenefitsCheckUp.org which then compares their information with eligibility requirements for federal programs such as Social Security, Medicaid, Food Stamps, and Weatherization or state administered programs; such as, pharmacy assistance, vocational rehabilitation and in-home services.

     Users then receive a printable report that tells them which programs they may likely qualify for and where to go to enroll.  What used to take days, weeks or longer to find out, BenefitsCheckUp.org can do in minutes. 

 

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