Ostomy Association of Greater Chicago

 Visiting Committee Chairperson's Message

 

Visiting Chairperson: Peggy Bassrawi
Contact her to request a member of the Visitor's team

Tel:  847-251-1626

Email:  pbassrawi@hotmail.com

 

One of the missions of our Association is to provide support and information to new or potential ostomates.  To further this goal we have a wonderful Visitor Program.  We have a caring and experienced team of volunteers to visit people in the hospital, at home or on the phone.  We will answer all questions about our new life.  The following are some missives from our Visitor’s column published in The New Outlook.  We though you might enjoy them.

 

Visiting a Patient with a Temporary Ostomy

By Muffy Truscott

 

     As a certified visitor with the local ostomy chapter, I have had many occasions over the years to visit patients who have just undergone surgery leaving them with a temporary ostomy.  Usually a temporary ostomy is done on an emergency basis, as the result of a blockage or obstruction in the colon, where stool cannot pass through. 

     This may be the result of diverticulitis or cancer of the colon, or sometimes inflammatory bowel disease or Crohn’s Disease may necessitate a temporary ostomy in order to allow the bowel to heal.  The intent is to reconnect the bowel later, and many patients are told by the attending physician to expect to have an ostomy for anywhere from three to nine months.

     My first thought, as I headed off to visit a patient with a temporary ostomy, was that this would be a piece of cake, and the visit would involve lots of questions about management of the ostomy.  I also figured that the patient would be greatly relieved knowing they would not have to deal with an ostomy on a permanent basis.  Boy was I wrong!

     This particular patient was angry beyond all belief, upset at what had happened to her, and definitely not prepared to deal with anything as disgusting as a colostomy.  To be sure, she was not angry with me, but the medical profession as a whole suffered her wrath, and it was quite evident that the nursing staff gave her a wide berth.  She was not going to like this ostomy thing!  Not having encountered this kind of reaction before, I was not exactly sure how to proceed, but I found myself listening to her frustration and empathizing with her situation.

     This calmed her somewhat, and she told me that I was the first person who had not treated her fears about the ostomy lightly.  She felt people did not take her seriously because hers was only a temporary situation.  The visit actually went fairly well after that, and although she was still angry at many things, I left feeling that she would manage her colostomy quite well in the short period of time she would have it.  It impressed upon me that people with temporary ostomies struggle with the same fears and anxieties that all of us who have permanent ostomies do.  In addition to this, because the surgery is done on an emergency basis, they have absolutely no time to prepare themselves for the eventual outcome…the ostomy.

     Do I sound like an all-knowing and understanding saint?  Well, I do not feel like one on some of these visits.  In general, I find most of those who have just had surgery resulting in a temporary ostomy to be very upset and unusually angry.  They just had not expected this!  I am sympathetic, as mentioned before, but the thought also crosses my mind, “Deal with it!”  Recently, I paid a visit to a woman after her emergency surgery who asked me how I could tolerate having a permanent ostomy!  At that moment, it seemed bizarre that I should be counseling her when I am the one who has to live with this thing on a full time basis.

     She could look forward to a reversal.  On the other hand, hard as it may sound, her comment actually helped me, and I did not have to hesitate a second for the answer.  I know, I cope with it because I would not be here if it were not for my surgery for colorectal cancer.  I was 37 at the time, and I suppose I had every reason to be angry, but I wanted so desperately to live.  The surgery and colostomy gave me a second chance at life for which I am truly grateful. 

     I would like to remind some of the people who have to live with temporary ostomies that their surgery likely saved their lives too and that a few months are not such a long time to live with an ostomy.  Nevertheless, I also have to remember how very frightening this surgery is, and how it is still considered such an awful thing to have an ostomy.  Despite our attempts to educate the public about the normal lives we lead, who among us would choose to have an ostomy?  Therefore, I internalize my thoughts, sympathize, and try to make the patient feel better about coping with their new situation.  However, a question still lingers, why do some people marvel at their good fortune while others retreat into anger and disgust?  We humans are truly a complex lot.

 

The Ostomy Visitor

--Green Bay News Review

 

     When working with a new ostomy patient, the goal is total rehabilitation so that this person will return to his/her normal activities. 

     ET nurses teach the patient all the basics he/she needs to know about his/her new stoma, barrier, pouch and all the other technical requirements necessary for satisfactory ostomy care.  However, the ostomy nurse—unless he/she has an ostomy him/herself—cannot understand and share the emotional part of having ostomy surgery.  This is where the ostomy visitor steps in…as the ET's ostomy resource. 

     Before there were ET nurses, the person with the knowledge of ostomy care was the another ostomate—the ostomy visitor.  At that time, visitors instructed patients on the equipment they would need as well as daily management.

     Today, the role of the ostomy visitor has changed.  However, it continues to be an important role.  Who can better share with the patient the emotional strain of a new stoma than someone who has been through it?  Who can better convince a new ostomate that life will get back to normal than another ostomate who has returned to work and recreation?  Who can offer new ostomates the best advice about the little everyday things that really make life easier?

     Yes, the ostomy visitor can do this.  The CWOCN nurse plays a large part in a new ostomate's rehabilitation, but the ostomy visitor plays an equally important part for most patients.  

 

The Importance of a Visitor

--The ReRoutes, Rockford Ostomy Association

 

     We are all experiencing—in one way or another—the many cutbacks in how services are provided for us.  This is especially true in the medical field.  With this in mind, the ostomy visitor plays an important role, whether it is before or after ostomy surgery.  The appearance of a well-adjusted, well-dressed, neat, clean, well-spoken, positive and pleasant ostomy visitor provides reassurance that the patient will also return to normal.

     Many times, the pre-op visitor is able to simplify the understanding of the surgery.  The idea of the visitor having been-there-and-done-that often helps a person to make the vital decision finally to have ostomy surgery.  The normal lifestyle and excellent appearance of the post-op visitor provides emotional support and reassurance as the patient travels the road of recovery ahead.

     Training to become a visitor is available from our Chapter of the United Ostomy Association.  After certification, the visitor will be chosen to make a visit matching ostomy type as well as the age and sex of the patient—as much as possible.  The actual visit in a hospital must be authorized by the doctor, the ET nurse, and, of course, the patient.

     Many of our new ostomates realize the value of an ostomy visitor by becoming a visitor themselves to reciprocate for the visit they had at the time of their surgery.  In the future, another training session will be held, and members are urged to participate in this important part of the UOA organization.  No price can be placed on the many benefits received from a sharing and caring ostomy visitor.

 

Deposit Happiness

 

 This story is about a 92 year old, petite, well-poised and proud woman.  She is fully dressed each morning by eight, with her hair fashionable coifed and makeup perfectly applied, even though she is legally blind.  She is moving to a nursing home today.  Her husband of 70 years recently passed away, making the move necessary.

     After many hours of waiting patiently in the lobby of the nursing home, she smiled sweetly when told her room was ready.  As she maneuvered her walker to the elevator, I provided a visual description of her tiny room, including the eyelet sheets that had been hung on her window.  "I love it," she stated with the enthusiasm of an eight year old having just been presented with a new puppy.

     “Mrs. Jones, you haven't seen the room...just wait.”  “That doesn't have anything to do with it,” she replied.  “Happiness is something you decide on ahead of time.  Whether I like my room or not does not depend on how the furniture is arranged, it is how I arrange my mind.  I already decided to love it.  It’s a decision I make every morning when I wake up.” 

     “I have a choice; I can spend the day in bed recounting the difficulty I have with the parts of my body that no longer work, or get out of bed and be thankful for the ones that do.  Each day is a gift, and as long as my eyes open I'll focus on the new day and all the happy memories I've stored away...just for this time in my life.”

     “Old age is like a bank account...you withdraw from what you've put in.  My advice to you is to deposit a lot of happiness in your bank account of memories.  Thank you for your part in filling my memory bank.  I am still depositing.”

 

If I knew it would be the last time

That I'd see you fall asleep,

I would tuck you in more tightly

and pray the Lord, your soul to keep.

 

If I knew it would be the last time

that I see you walk out the door,

I would give you a hug and kiss

and call you back for one more.

 

If I knew it would be the last time

I'd hear your voice lifted up in praise,

I would video tape each action and word,

so I could play them back day after day.

 

If I knew it would be the last time,

I could spare an extra minute

to stop and say "I love you,"

instead of assuming you would know I do.

 

If I knew it would be the last time

I would be there to share your day,

Well I'm sure you'll have so many more,

so I can let just this one slip away.

 

For surely there's always tomorrow

to make up for an oversight,

and we always get a second chance

to make everything just right.

 

There will always be another day

to say "I love you,"

And certainly there's another chance

to say our "Anything I can do?"

 

But just in case I might be wrong,

and today is all I get,

I'd like to say how much I love you

and I hope we never forget.

 

Tomorrow is not promised to anyone,

young or old alike,

And today may be the last chance

you get to hold your loved one tight.

 

So if you're waiting for tomorrow,

why not do it today?

For if tomorrow never comes,

you'll surely regret the day,

 

That you didn't take that extra time

for a smile, a hug, or a kiss

and you were too busy to grant someone,

what turned out to be their one last wish.

 

So hold your loved ones close today,

and whisper in their ear,

Tell them how much you love them

and that you'll always hold them dear

 

Take time to say "I'm sorry,"

"Please forgive me," "Thank you," or "It's okay."

And if tomorrow never comes,

you'll have no regrets about today.

 

Helping Patients Adjust

--Ostomy Highlife

 

The patient with an ostomy is apt to foresee a life of ostracism.  Even though he/she may have been ill and limited in activity for a long period, it will be difficult for him/her to acknowledge the inability voluntarily to control his/her bowel or urine function.

 

As his/her family doctor, you may be able to handle the patient's questions and emotional difficulties better than the consultant may, who is a stranger to the patient.  However, the best medicine is a visit by a healthy, happy, fellow ostomate.  It is also important that the patient is associated with an enterostomal therapist.

 

If the patient is a woman, the sight of an ostomate in a slim sheath without a telltale bulge can provide assurance.  In addition, the visitor will answer the type of questions the patient might be reluctant to ask others.  The following are typical questions new ostomates ask, and the answers a fellow ostomate can provide.

 

Can I have intercourse?  When the patient asks about the potential for sexual intercourse, it is a harbinger of a successful adjustment.  A man will be concerned about his ability to perform, a woman about her ability to attract and satisfy.  All too often, the subject is skirted or, even worse, is handled negatively with, "What difference does it make at your age?" or "This operation is going to save your life—isn't that enough?"

 

According to the United Ostomy Association, it is estimated that approximately 10-20 per cent of male ileostomates suffer impairment of sexual function and potency.  However, fortunately, this is only temporary in most cases.

 

Males who have had urinary ostomies early in childhood can usually perform sexually, but they may be sterile.  More than half of the males who have urinary surgery as adults for bladder malignancy are impotent.  The average age for this surgery is 74.

 

Male colostomates vary in their degree of potency from full potency to complete impotency.  In many instances, potency is retained, but in these cases, the patient is sometimes sterile.  In some patients, potency is lost due to the extent of the surgery.  In a few cases, regardless of the type ostomy, it may take as long as two years to regain potency.

 

Is marriage possible for me?  Many ostomates have married.  An ostomy is not a barrier to getting married.  The first ET nurse, Norma Gill, was married after her ostomy surgery. 

 

Moreover, usually, no marriage breaks up solely based on the ostomy, although it may put added pressure on an already weak relationship as will any serious illness or emotional event.  In fact, a remarkable 82% of ostomates are still married to the same spouse a year after surgery.  This compares to 76% of the normal population.

 

Can I have a child?  A patient contemplating pregnancy should consult her physician for evaluation of her individual situation, but an ostomy in a woman does not preclude a successful pregnancy.  In addition, an ostomy is not an indication for a caesarean section.  Many ostomy women have normal vaginal births.

 

There is a need, however, for close medical care during pregnancy.  The ostomy may tend to enlarge or protrude.  This may require a temporary change in her ostomy management system to permit the modifications to the size and location of the stoma.  An ostomy woman may also require more careful monitoring of her diet and fluid needs.  However, on the other side, ostomy women never worry about constipation or hemorrhoids like their continent friends.

 

Can I travel?  The patient can go anywhere in any type of vehicle.  An ostomy alone does not stop someone from climbing mountains; riding horseback; flying in airplanes; driving in autos; riding bicycles; taking cruises; etc.

 

All ostomy patients should buy a copy of the book, Yes We Can!  by Barbara Kupfer.  It is currently the best resource on traveling, and offers all types of valuable advice on traveling with an ostomy and tips for everyday living.

 

Will I be able to sleep at night?  Any comfortable position may be assumed with a correctly applied ostomy appliance.  Having an ostomy will probably improve the sleep of a patient who has previously been sick. 

 

Can I participate in sports?  Ostomates report enjoying many types of sports—water skiing, body surfing, skin diving, tennis, golf, baseball, football, hockey, weight lifting, running, bicycling, hiking…you name it. 

 

Rough contact sports require special protection for the stoma.  However, there are professional athletes in all types of sports with stomas.  An ostomy alone is not a reason not to participate in sports.  You can assure your patient that he/she will be back on the golf course, hitting them as good as always.  The ostomate’s desire is to return to his/her normal way of life, and there is every reason he/she will do just that.

    

What to Say

By Georgia Photopulos, WAOS Newsletter

 

What should one say to someone who is sick?  There is not a set of guidelines for being a good friend.  However, if you would like a few simple tips, well, here they are—direct from the patient's mouth:

 

·         Do not be afraid to ask me what I have, how I am doing or what my treatment will be.  At worst, I will say I do not want to discuss it.  At best, I will welcome the opportunity to talk about my situation.

 

·         Are you worried about what to say?  What did we talk about before I became ill—politics, art, religion, the PTA, children?  I am still interested.

 

·         Don't try to cheer me up by telling me things could be worse; that I'm lucky my spouse hasn't left; that I could have been hit by a truck.  It does not help.  In fact, do not try to cheer me up at all.  What I need most when I am depressed is a compassionate comforter and listener.

 

·         I do need a sensitive, empathetic listener.  Do not assume you know how I feel.  It is not even important.  A husband will visit his wife after she has given birth to their child, and yet, The man has no real frame of reference for what his wife has just experienced.  Regardless, the wife is always happy to talk to the husband about everything that has happened.

 

·         If I look horrible, do not tell me I look great.  Your lie will hang between us and undercut anything else you say.  You do not have to comment on my looks at all.

 

·         Remember, I chose my doctor and unless I say otherwise, I am probably satisfied with him/her.  Do not ever bring articles about other doctors, other hospitals, or other treatments unless I ask you about them.

 

·         I really like it when you bring flowers, books, games—whatever you know that I like.  Most of all…bring you.  Illness interrupts so much; do not let it interrupt our friendship.

 

·         If anything about my illness trouble you, if it makes you upset, sad or nervous, tell me.  Your silence may hurt me—something I know you do not want.

 

The Ostomy Visitor

--Green Bay News Review

 

When working with a new ostomy patient, the goal is total rehabilitation so that this person will return to his/her normal activities. 

 

ET nurses teach the patient all the basics he/she needs to know about his/her new stoma, barrier, pouch and all the other technical requirements necessary for satisfactory ostomy care.  However, the ET—unless he/she is an ostomate him/herself—cannot understand and share the emotional part of having ostomy surgery.  This is where the ostomy visitor steps in…as the ET's ostomy resource.

 

Before there were ET nurses, the person with the knowledge of ostomy care was the another ostomate—the ostomy visitor.  At that time, visitors instructed patients on the equipment they would need as well as daily management.

 

Today, the role of the ostomy visitor has changed.  However, it continues to be an important role.  Who can better share with the patient the emotional strain of a new stoma than someone who has been through it?  Who can better convince a new ostomate that life will get back to normal than another ostomate who has returned to work and recreation?  Who can offer new ostomates the best advice about the little everyday things that really make life easier?

 

Yes, the ostomy visitor can do it.  The ostomy nurse plays a large part in a new ostomate’s rehabilitation, but the ostomy visitor plays an equally important part for most patients.

 

The Ostomy Trap

--Tulsa Ostomy Association

 

One trap we must avoid is letting our whole life revolve around our ostomy.  Preoccupation with managing an ostomy can sometimes make us fail to realize how unimportant it is to other people.

 

Our families and friends are only concerned that we join them again in our usual activities of work and play.  Sure, we have challenges managing our ostomies on occasion.  However, people without ostomies have elimination problems at times, and if we think back, we can probably remember when we had more than our share.

 

Now, we can enjoy a freedom not possible before our operation.  We will continue to have upsets from time to time, but so do those who never had an ostomy.  Our own experience together with the shared knowledge of our fellow ostomy members along with the advice of our doctors and ET nurses will see us through these infrequent and unpleasant episodes.

 

To all our members:  I came across this short story and was so inspired that I wanted to share it with all of you.  Jeri Zaslavsky

 

 

Everyone Can't Be in the Front Row

 

     Life is a theater--invite your audience carefully.  Not everyone is healthy enough to have a front row seat in our lives.  Some people in your life need to be loved from a distance.  It is amazing what you can accomplish when you let go, or at least minimize, your time with draining, negative, incompatible, not-going-anywhere relationships or friendships!

     Observe the relationships around you.  Pay attention.  Which ones lift and which ones lean?  Which one encourages and which ones discourage?  Which ones are on a path of growth uphill and which ones are going downhill?  When you leave certain people, do you feel better or feel worse?  Which ones always have drama or really understand, know or appreciate you?

     The more you seek quality, respect, growth, peace of mind, love and truth around you, the easier it will become for you to decide who gets to sit in the "front row" and who should be moved to the balcony of your life.  You cannot change the people around you...but you can change the people you are around!

 

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     Walking on a summer day, jumping into a swimming pool, or lifting a child up into your arms…these are just a few of our every day activities; all of which require us to have strong, healthy bones.  Our bones are what allow us to partake in everything that we do, therefore, it is imperative that they function properly.

     It has come to my attention that ostomy patients, especially those with ileostomies, are at an increased risk for bone density loss.  This loss is due to the lack of calcium absorption into the bones.  I can speak about this topic from personal experience, because I was recently given a test to measure how much calcium my body has been absorbing.  My level of absorption was quite low.  Many doctors feel that because of my ileostomy, I may not be absorbing the proper amount of calcium.  The lack of calcium in the bones can lead to a disease called osteoporosis.  Contrary to popular belief, men as well as women may have difficulty absorbing calcium, leading them to have a loss in bone mass.  It is important for us ostomates to be aware of this, and make sure that our doctors are monitoring this potential problem.

     Osteoporosis is a silent disease that causes bones to thin, become weak, and fracture with no warning especially in the hip, spine and wrist.  Today in the United States, anywhere from seven to 8 million individuals already have this disease.  Approximately 17 million more people have low bone mass, placing them at increased risk for osteoporosis.  The good news is that osteoporosis is preventable and treatable.  There are steps you can take to keep your bones stronger.  My best advice to you is to check with your doctor.  He/she can further inform you about osteoporosis and bone mass loss, and the preventive measures that you can take to lessen your risk of the problems associated with osteoporosis.

 

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     Many times as a visitor we are asked by a patient, "Why do I need a support group?”  Most of our members know how important support can be for a new ostomate.  Even if someone is part of a strong supportive family, it is difficult to share fears, concerns, and intimate details related to ostomy surgery.  Often a patient may feel alone; like no one is able to feel his/her pain; or that no one understands what he/she is going through.  Support groups put people in touch with others who have gone through the same experience and have the same feelings.  The tendency for most of us is to withdraw from close contact during this period of adjustment.  This isolation may slow the healing process.

     Help a new patient consider a support group as a healthy and safe way to deal with whatever issues he/she may be experiencing.  It has been proven repeatedly that a patient who does not feel isolated will make a much quicker recovery mentally and physically.

**********

Reflecting on our January 2002 program, I am very inspired by the panel of ostomates.  Each of them had an unusual and difficult personal story to share.  Our group participation was also most interesting.  I cannot thank those of you who are already on our Visiting team for all your cooperation whenever it is needed.  Most new Ostomates are eager to become visitors, and we would love to have each one of you on our team.  I know first hand that giving back, makes you feel wonderful now that you are making a difference in our special world.  However, there is much more to be done in our group that would allow a new ostomate to feel fulfilled.  A small job like greeting people at the door during our General Meeting, making them feel welcome and less stressed is a way to get to know people and begin to get involved.

The Visiting team needs volunteers continually to contact Doctors and ostomy nurses, to remind them of our wonderful services.  This is a huge job and we can use a few capable volunteers.  Each position on our Board would jump at the chance to have help in continuing to make this a support group that will enable us to reach as many people as we can.  That is our main objective after all.  Remember we need help from everyone, if you have one hour to give a month or one hour a day, just call and we will find something that would interest you.

 

**********

 

The more you do unselfishly, The more you live abundantly.
The more of everything you share, The more you'll always have to spare.
The more you love, the more you find That life is good and friends are kind.
And only what we give away
Enriches us from day to day.

 

**********

 

The Visitor is living proof that life goes on.  Visitors are out doing the very things the new patient wonders about.  They are the symbol for hope in the midst of pain, confusion and fear.  Making a visit might seem like a small thing to you.  It is like lighting a candle in someone's darkness.  Please, let us keep spreading the word:  The Visitor can be one of the most important aspects of a patient's full and happy recovery.

**********

 

A Request from your Visitor's Team

 

Our Visitor team needs up-to-date Ostomy Quarterly's for the packets given to new ostomates.  When you are finished with your Quarterly, please bring it to the meeting.  Leave it on the Welcoming table.  Thank You

 

**********

 

    I am eager to hear from more of you as we lay our plans for continuing the effective work of the Visitor Team.  As an ostomate, you surely have experiences that would be worth sharing with someone who is just beginning to live with an ostomy or who is facing the prospect with understandable uncertainty.

    Many individuals are apprehensive when asked to talk about their ostomies.  But with training and a heart willing to reach out to others, each of us can be that person who got someone started right, and brought comfort and hope to another. 

    We know the secret that an ostomy truly can afford an opportunity for a full life for those who need this surgery.  Sharing the secret gives others support and ourselves a deep sense of satisfaction.  Call me to discuss your participation on our Visitor Team.

                                                                                               

**********

 

You all know we run a visiting program.  The idea is that if we all join forces, we can help each other reach our goals of finding more patients who are faced with the decision of ostomy surgery.  We are actively supporting one another on a daily basis, and we plan to continue our quest for ET nurse and doctor support.  Please help us continue to spread the word about this wonderful program.  Tell your doctor and your nurse how helpful this program was, or would have been to you.  If you know of anyone who would benefit from talking with a trained ostomy visitor, please call us.

 

                                     **********

Dear Friends,

 

The holidays are approaching, and images of peace, love, and harmony are popping up everywhere.

It is a time for great joy, good feelings, and family togetherness.  Right?  Well, what happens when Uncle Jim comes to visit, and has an argument with one of his kids, and ruins your holiday spirit?

Alternatively, family members refuse to help with last minute details.  Then there is the shopping!  You are not alone.  Each year millions of people suffer from increased stress and tension during the Holidays.  Much of this stress can be avoided.  I would like to share some of my thoughts with you about how to decrease holiday stress.  The ideas are quite simple when you think about them, and could be applied to your own situation.

**********

Five Causes of Holiday Stress

 

#1 Social and Personal Expectations


Social expectations are a huge source of stress for many people.  The holiday season is not a happy

time for everyone.  Not everyone feels in a partying mood all the time.  Yet, just about, everyone feels compelled to look and feel merry during the holidays.  This is a form of social pressure that can be very stressful, especially if you happen to be in an emotional down cycle at the time.

 

#2 Too Many Responsibilities

 
Be careful during the holidays not to over commit.  Do not take on more than you are comfortable handling.  Stop trying to be Superman or Superwoman by doing it all yourself. 

 

#3 Blaming yourself or others when Things Go Wrong

 
During the holidays, there are many opportunities for things to go "wrong.”  Our automatic pattern of blame will be triggered more often.  Watch out for this cause of stress not just during the holidays but all year long as well.

 

#4 Using Food, Or Alcohol to Cope With Stress


Unfortunately, these coping strategies remain very popular for one important reason - they are all socially sanctioned.  Wherever you go, food and alcoholic beverages will be plentiful, and you will be encouraged to partake.  However, I can just about guarantee that this will only add to your stress level after the holidays.

 

#5 Dealing With Financial Stress during the Holidays


Try to develop a budget prior to shopping and entertaining.  Overspending during the holidays is easy to do, and can create added stress prior to and after the holidays.  You should try to create a good financial system, and then you should be able to handle the increased pressures during the holiday. 

 

I wish you and your families a Very Happy and Healthy Holiday Season, Jeri Z.

 

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  People volunteer for a wide variety of reasons, especially those wanting to help
  others.  However, it is OK to want some benefits for yourself from volunteering. 
  This month in addition to helping many people, I felt good about our
  visiting program and myself!

  I know first hand how making that connection between the patient and the
  visitor can make all the difference in the world.  Moreover, knowing I helped

  make those connections made me feel good about myself, and what I am
  doing as a volunteer.

  Do not just consider volunteering as something you do for other people;
  begin to think of it as an exchange.  Today, you may be the person with the
  ability to help, but tomorrow, you may be the recipient of someone else’s
  volunteer effort.

  Please help the visiting team do this very important job.  Continue to
  spread the word about this program.  Remind your doctors and ET nurses
  that we are here to help.

             **********                          

     Support groups are all about sharing personal stories with others in the hopes that your story will benefit someone else.  Sharing one's personal experience is a common way in which a visitor helps a new ostomy patient. 

     April 2001 is the four-year anniversary of my ileostomy surgery.  It is amazing how it has changed my life for the better.  I lived with intermittent severe pain for most of my life, and the surgery gave me a new life.  I have devoted myself to helping others not live in fear of a surgery that I once dreaded and for which I am now thankful.  I would like to share a personal story with our Chapter with the hope that somebody may benefit from the challenging experience I had just last month.

     I was at the movies with a friend.  As is my usually routine, I had a bag of popcorn.  However, I did not eat lunch this day and instead had a large bag instead of a small one.  I always eat popcorn slowly, carefully, and with plenty to drink.  However, much to my surprise later that evening, I developed cramps and pain that I had not experienced since long before my surgery.  After phone calls to Chapter members for guidance, and at the urging of my husband, I went to the emergency room of our local hospital late that evening.

     After many hours and procedures, I do not care to mention these not to offend the faint of heart ... my blockage began to release.  If it did not break up on its own, I would have needed surgery to relieve it.  It was a very frightening experience, not to mention the pain and discomfort that I unnecessarily endured.  After being released a few hours later, I was fine, but sore for a few days.

     I encourage all of you who eat popcorn on a regular basis to switch your snacks to pretzels, Cheetos, potato chips and new snacks.  I have discovered that these types of snacks are enjoyable and are recommended for ostomates.  I was dramatically reminded that my plumbing is at times more temperamental if it is abused.  I will also remember that certain foods can cause blockages, which can be painful and injurious to my plumbing.  

     With summer approaching, I wish you all carefree days at the park, baseball games, and street fairs.

**********

Dear Members,

 

I read this tip in Top Health, the Promotion and Wellness Newsletter.  I hope that we can all benefit from this information.

Six Reasons why you should walk

 

Walking is simply one the best exercise you can do.  Why?

 

It is easy.  You already know how-no special training required.

 

It is safe.  At a brisk pace (about 3-4 mph), walking can burn as many calories as running.  However, it is easier on your bones and joints and is less likely than running or jogging to cause injuries.

It is cheap.  Walking does not require any special equipment, except for comfortable, well-fitting shoes.

 

It is a weight manager.  Walking helps increase the number of calories your body burns and helps control your appetite.  Note.  Weight control helps prevent Type II, "adult onset" diabetes.

 

Its weight bearing.  When you walk, whether it is around the block, or up and down the stairs, you are bearing the weight of your body.  In addition, weight-bearing exercise helps build bone mass, which prevents osteoporosis.

It is a lifesaver.  Walking is an aerobic exercise, so it is good for your heart.  It lowers blood pressure and reduces the risk of heart disease, stroke and cancer.

 

And that's not all: Studies show walking gives you more energy, reduces stress, promotes better sleep, and builds muscle and reduces fat in your legs and abdomen.

How Much Should You Walk?  Aim for a half-hour most days of the week.  Recent research reported in Circulation showed that walking at least three miles per week reduced risk of heart disease by 10 percent.  Short on time?  The journal also reported that two 15-minute sessions of moderate exercise (like walking) are as beneficial as one 30-minute session.  I suggest walking during this beautiful time of year to help a new ostomate regain strength after surgery, and promote a healthy and happy state of mind.

 

Visiting Chairperson: Peggy Bassrawi
Contact her to request a member of the visitor's team

Tel:  847-251-1626

E-mail:  pbassrawi@hotmail.com