Day to Day Living with Your Ostomy

 

Articles Included:

·        Stress and Intestinal Gas

·        Ileostomy and the Immune System

·        Temporary Ostomies

·        Seniors with Ostomies

·        Ostomy Poll

·        A Pouch Falling Off

·        Colostomies and Constipation

·        Living with an Ostomy

·        Life as an Ostomate

·        Drugs and the Senior

·        Appeal Denied Medicare Claims

·        The Things People Tell Pharmacists

·        Live Longer

·        Making a Living

·        Ostomy Facts

·        Over Diagnosis of Cancer

·        Set in Your Ways

·        Choosing the Right System

·        IBS Survey

·        Quality of Life Study

·        What to do if you Lose Your Wallet

·        Blood Pressure

·        Diet Affects Prostrate Cancer

 

Stress and Intestinal Gas

Space Coast Shuttle Blast, Cocoa, FL

 

     One of the most common gastrointestinal complaints is caused by stress.  Flatulence occurs in people during stressful situations.

     While under stress, breathing is deeper and one sighs more, encouraging a greater than normal intake of air.  In fact, studies show that the average American belches about 14 times a day.  The person with a flatulence problem does not belch more often.  However, they may experience the sensation of needing to belch and get little relief from doing so.  Here are some ways to relieve gas:

·        Avoid heavy fatty meals, especially during stressful situations.

·        Reduce the quantity of food consumed at one sitting.  Eat small low-fat meals about every three hours.

·        Avoid drinking beverages out of cans or bottles.

·        Avoid drinking through a straw.

·        Avoid foods and beverages you personally cannot tolerate.

·        Avoid any practice that causes intake of air; e.g., chewing gum, smoking.

·        Drink at least eight glasses of water a day.

·        Experiment with foods in your diet to achieve adequate bowel regularity.

·        Avoid eating too many fiber foods in one meal.

·        Avoid skipping meals.  An empty bowel encourages small and gassy stool.

     Poor digestion can often exaggerate the symptoms associated with flatulence.  Digestive enzymes aid in food assimilation and chemical digestion.  Enzyme supplements should always be taken immediately before or after eating.  Food coats the stomach and helps prevent gastric juices and acids from destroying the enzyme action.

 

Ileostomy and the Immune System

Forwarded By ReRoute, Evansville, IN Chapter

 

     In response to a query about the possible effects of ileostomy surgery on the immune system, Dr. Beck—a loyal supporter or UOA—notes that the surgery, by itself, should have no long-term effect on the immune system.  Although there is some transient reduction in a patient’s immune responses right after major surgery, this usually returns to normal in a couple of days.

     However, the diseases that causes patients to need a stoma—such as inflammatory bowel disease—and the medications used to treat these diseases (steroids) or malnutrition associated with the diseases may affect the immune system.  If you are concerned, there are several tests that a doctor can perform to test your immune system.  One of these involves placing chemicals or allergens into the skin to see how the body responds.  Others involve blood tests.

     We are continually learning more about the human immune system from our experience with HIV infections. Most efforts are directed toward identifying and then treating the cause of the immune dysfunction. Although good nutrition and some supplements—such as vitamins—are necessary for the immune system to work, little has been proven to improve the immune function.

 

Temporary Ostomies

By Nancy Brede, RN/ET

 

     Temporary ostomies are surgically created with the intent of reconnecting in the future.  The anatomy of the gastrointestinal system or urinary system is left intact.

     Permanent ostomies are created with the intent that the ostomy surgery will not be reversed; usually the surgery is performed when disease or injury prevents maintaining the anatomical structures needed for reversal.  

     A large number of temporary ostomies involving the colon are done on an emergency basis.  The colon becomes obstructed or blocked, and stool cannot pass through.  Because of the emergency nature of the surgery, the bowel cannot be cleaned and prepped ahead of time.  Reversal, or re-anastomosis—hooking up the normal anatomy—can be done later, when infection is not as likely and proper healing can take place.

     The most common situations and diseases requiring a temporary ostomy are:

·        Cancer of the colon with obstruction or other abdominal cancers affecting the colon.

·        Hirschsprung’s disease, a disorder/malfunction in infants which prevents passage of stool.  Due to lack of nerve cells in certain areas of the large intestine, stool is not moved through, and an ostomy is necessary.

·        Diverticulitis, small out-pouchings—diverticula—in the wall of the intestine becomes infected.  The diverticula may rupture or cause obstruction.

·        Inflammatory bowel disease or Crohn’s disease may necessitate a temporary ostomy to allow the diseased bowel to heal.

Persons with temporary ostomies face many of the same problems permanent ostomates have.  It is just as important for them to have support, reassurance, and teaching as it is for persons with permanent ostomies.  They must learn proper skin care, stoma care and pouching techniques.

     Often, stomas are not ideally situated on the abdomen because of the urgency of the surgery. Thus, pouching and skin care can pose difficult problems.  Following temporary surgery, measures need to be taken to improve the person’s health.  He/she must be in the best condition physically to undergo the major surgery for reconnection.  

     This is also a time for the person to psychologically deal with past surgery, upcoming surgery and possibly a newly diagnosed disease.  It may be a difficult time with all the changes and new challenges.  Often, there are many fears and unanswered questions.  Other people with ostomies and ET nurses may provide reassurance and the answers to many questions.

 

Seniors with Ostomies

Indian River Ostomy Association, FL

 

     As baby boomers age, there are a greater number of illnesses just waiting for them.  Years of fast foods and stress make a breeding ground for intestinal problems.  When they can no longer deny that their fast-paced lifestyles and poor eating habits have caught up to them, they seek medical help.

     When tests confirm intestinal problems that require surgery, their whole world seems to explode around them when the doctor says, “You need an ostomy.”  If the patient is fortunate enough to have a doctor who is aware of the local ostomy association, he/she will ask the ET nurse managing the pre-surgery examination to arrange for a visit.  

     It is only when an ostomate talks to other ostomates that the problems that seemed insurmountable are gradually chipped away.  That is what the UOA and local chapters are all about — ostomates helping other ostomates.  And where is the best place to find this information and help?  Why, at a monthly chapter ostomy meeting, of course.

 

Ostomy Poll

By www.ostomates.org

 

What is the best thing you’ve found about having ostomy surgery?

Results from 148 people

 

I’m free from all medication and pain           23%

I’m free from looking for nearest toilet        17%

I can mostly do what I want, when I want     13%

I have freedom                                               14%

I’m free of my disease                                   10%

There is no good thing about it ... I hate it      6%

I’ve only just had surgery                                6%

No surgery but am contemplating it              11%

 

Who have you told?

Results from 757 people

 

Nobody—It’s my own business                       4%

Only those who need to know                        20%

Only close family                                             5%

Only close family and friends                        27%

Anyone who cares to listen                            44%

 

A Pouch Falling Off

Adapted By The New Outlook

 

     One of the most embarrassing situations that can befall a person with an ostomy is to have an accident because the barrier or the pouch pulled loose.

     Multiple reasons exist to explain the falling off of an ostomy system:

·        The stoma

·        The skin around the stoma

·        The barrier

·        The pouch

The stoma may be placed too close to a scar, crease or bodily prominence so that the twisting or bending loosens the barrier.  This is no single solution for a misplaced stoma.  A different barrier may be tried; e.g., one that is softer and more pliable like the new and improved version of Hollister’s New Image Ostomy System.

     An irregular area may be built up with the new seals—like ConvaTec’s Eakin Seals—or with paste.  Using these products will usually solve most challenges.  

     A stoma may require surgical intervention if one has a prolapsing stoma that is pushing the pouch off.  Conversely, a flat or recessed stoma may cause pooling of the effluent around the stoma eroding the adherence and eventually lifting the barrier from the skin.  Fortunately, manufactures have developed ostomy systems with curved barriers that put minor pressure on the skin around the stoma.  These convex ostomy systems are a growing product line of retailers as more and more people discover the advantages of wearing a convex barrier. 

     The most stubborn falloff problem can usually be solved by using a seal with a convex barrier held on with a belt.  Your ET nurse is expert in solving these types of issues. 

     The skin around the stoma might be too oily or too irritated for the barrier to hold satisfactorily.  Bath oils and greasy creams should be avoided.  But, there are products that may be put on the peristomal skin to treat skin irritation problems.  Ostomy product manufacturers all carry skin care products that will treat peristomal skin and yet at the same time allow your barrier to adhere firmly to your skin.

     There are many different producers of many different barriers.  They offer you a large choice of products that may work for you.  You need to try different products if you are having problems.  One barrier will not work for everyone in the same way.  For instance, one urostomate in our Chapter had a problem with falloff using a flat, Stomahesive barrier.  He saw an ET from our Chapter and she recommended he try a Durahesive barrier with convexity along with a belt to gentle hold it in place.  It worked!  Our member was so pleased that he could resume his life doing the same activities he did before surgery.

     A well fitting pouch that is suited to your needs and lifestyle is essential.  If your pouch keeps coming off, have your entire ostomy system evaluated by an ET nurse.  Do not settle for less than excellent service from your ostomy system.  There are solutions to most any problem with ostomy management.  Invest the time to talk to a professional ostomy nurse—at a hospital, through your retailer, at a Chapter meeting or even by calling one of the manufacturers themselves.  There is no need to suffer!

 

Colostomy and Constipation

Vancouver Ostomy High Life

 

     Way back before surgery, did you go to the bathroom after a hot cup of coffee, milk, cold juice, whiskey or beer?  Well, whatever made you feel that need then, can make you feel the need now.  Check it out.  

     See if your irrigation can be helped by some of the things you used to do.  Of course, if you have had your colostomy for a number of years, your previous habits may not be the same now.  Your body can, however, be trained as it was before, and you can adapt yourself to certain habits which can help you to be in control.

     A glass of hot water or juice, or a cup of coffee before a morning irrigation may initiate gut reaction.  Also, a glass or two of water, after the water return starts, is usually helpful.  If you irrigate before going to bed, a glass of ice water or a cup of hot coffee should get you started.  If you have not drank much water during the day, it would be wise to drink an extra glass or two to make sure your tissues will not absorb so much, or you may be left with little or no return.

     But what if you don’t irrigate?  Part of the difficulty in elimination of waste matter experienced by colostomates is due to lack of bulk in the diet.  Consumption of white bread, pastry and highly refined foods does not provide the roughage and bulk necessary for proper evacuation of the colon.  The deficiency can be overcome in part by the simple addition of bran to the diet.

     Bran can be made into muffins adding raisins and molasses to taste.  Diet ... there is no such thing as a colostomy diet.  A colostomy is not an illness, so try to eat the same foods you have eaten and enjoyed in the past.  If you are on a diet for a condition such as diabetes or high blood pressure, of course you should stay on that diet.

     Foods can be acidic or alkaline, bland or spicy, laxative-like or constipating.  Individuals react differently to food.  Try to return to your former, normal diet.  Those foods which disagreed with you in the past may still do so.  Chew well and see the effect of each food on your colostomy output.

     To maintain good health, the body requires carbohydrates, proteins, fat, minerals and vitamins.  Water is not nutritious but is absolutely necessary.  Having a balanced diet is a fitting way to maintain good nutrition and keep bowel activity normal.  Every day your body needs meats or fish, dairy foods, vegetables and fruits, cereals and bread, and liquids.  And always, talk to your physician or ET nurse if you have problems.

 

Living with an Ostomy

By Florence Weber-Javers, RN, CETN

                                                                                                             

Remember when you were in the hospital, and you were told you would have to live with an ostomy?   When you looked at your stoma for the first time, what was your reaction?  Most likely, you were shocked, depressed, seared.  You could not imagine how you were going to live with "this thing."   How far have you come since then?  Do you still call your stoma "the thing," or have you given it a special name?   Do you sometimes even forget that your stoma exists?    Everyone's adjustment is a bit different, but hopefully you've accepted your stoma. I tell my patients, "You don't have to like the stoma, but you do have to learn to live with it."

 

You rule your stoma

 

You need to take the time to take good care of your stoma but not let it rule your lifestyle.  In other words: "You rule the stoma. Do not let it rule you."  After all, you're the same wonderful person you were before your surgery.


Help is available

 

You need to know some basics to reach a satisfactory point of control over your ostomy.   You  need to know how to take good care of your stoma and surrounding skin, and what information is available to help you and where to obtain sound advice.    You also need to take that information and assimilate it to fit into your own lifestyle.   One reason you see so many products in ostomy  catalogs is not to confuse you, but to help you find the right products so you may personally choose the best way to get on with living.   Your local UOA chapter is an excellent source of information, advice and support.    Use this resource for the benefit of yourself, and also for the benefit of others.   You know, we want to hear about your story, and about your successes.


Does it hurt?

 

First, you need to know about your stoma itself.   It's red and looks as if it ought to hurt.  But the stoma is actually your intestine, which does not have any nerve endings.   Reassure your spouse about this.   Your mate may be afraid of hurting you if the stoma is touched.   An ostomate may feel

rejected because of the mate's fear to touch him/her.   If your spouse understands the stoma has no

feeling and will not hurt you, he/she will be more at ease.

 

Learn to live with it

 

Your attitude is also important.  If you can't accept your stoma, how can you expect someone else to accept it?  Remember, you don't have to like it, but you must learn to live with it.    I'm sure there are other parts of your body that you would like to change.  Maybe you think your nose is too

big or your thighs are too large.  Or maybe your eyesight is not the greatest.  These are all unique characteristics we learn to live with.  Your stoma is just a new part of you that you learn to live with.

Remember the symbol of the United Ostomy Association is the Phoenix.   The Phoenix is the  mythical bird that was risen from the flames.   Ostomates are "risen from the ashes of disease."  You don't have to like your stoma, but you do have to live with it.   There are people who said, "I could never live with one of those."  And you know what, they didn't.

 

Should I worry about bleeding?

 

The reason your stoma is red and your stoma bleeds easily is that the blood vessels in your intestinal lining, which is what your stoma is made from, are very close to the surface.  This is why it's important for you to be gentle in cleaning your stoma.  A small amount of bleeding is normal and nothing to be concerned about.   Excessive bleeding should be reported to your doctor or ET nurse as needed.   Excessive bleeding means more then a drop or two.   If you touch it with a tissue, you may notice some red on the tissue.   This is what is normal.   If you have much more of this, meaning you actually witness bleeding, see someone immediately.   This is not normal.  Anytime we are bleeding it is not usually good.   Check with a health professional about it.

  

Make sure nothing constricting is riding over your stoma, reducing the blood supply needed to keep this vibrant tissue alive.  Elastic belts over your stoma are usually okay, but a leather belt doesn't give enough to ride over your stoma if it is on your beltline.  Ideally, your stoma is located below the beltline, but sometimes it cannot be surgically positioned in the ideal site.  

 

Isn't is supposed to be round?

 

Stomas come in all sizes and shapes, just as all of us do.  If you are worried that your stoma does not fit exactly into one of those cute measuring guides with the perfectly round holes, don't be  discouraged.   Most stomas are not perfectly round.  The measuring guide is just that, a guide.  You customize it to fit your personal need.   This is a vital point.   The correct size for your equipment is extremely important.   Always measure your barrier to the correct size, no matter how it is built.   Just like us, stomas come is all shapes and sizes.

 

The Right fit

 

Initially after surgery, your stoma is probably swollen.  It will decrease in size.  Your nurse should show you how to measure your stoma correctly.  Measuring is an ongoing concern.  Most of the problems I see after surgery are created by incorrect sizing of the stoma.   You want the opening in your pouch or adhesive to fit as closely as possible without touching the stoma, leaving a 1/16" to 3/16" border from your stoma.  This is to allow for your stoma to change size and shape.  Yes, your stoma does move and change size slightly with the normal peristaltic waves of your intestinal tract, of which it is, after all, a part.   A soft pliable substance is usually used directly around the stoma, such as a paste or a washer, to fill in this 1/16" to 3/16" gap around the stoma.   It acts as a washer  or caulk to protect the skin directly around the stoma, and to protect the seal of the pouch to your body.  The more liquid the discharge from your stoma, the more important the caulking compound is.   Liquid effluent usually break down adhesives faster than solid.

 

Which pouch?

 

Now that you know what size your stoma is and the importance of skin protection, let's discuss what type of pouch you'll be wearing.  Maybe you're still wearing the same type you had when you  were discharged with from the hospital.   This is perfectly okay if you are comfortable with it.  If you are not really happy with that type of pouch, by all means decide what it is that you don't like and try finding another type that is more compatible with you.   Take advantage of the great variety of  products on the market.

 

Sometimes it makes a difference where your stoma is located to determine the best pouching system for you.   Remember, you're trying to find what will best f it into your lifestyle.  You can  listen to your doctor's and nurse's advice as a guide, but you're the one wearing the pouch.   You should be as comfortable as possible.   Find what will best fit into your lifestyle.

 

Most people wear a drainable pouch, which comes in different lengths, shapes and materials.  Shorter pouches are better for shorter people so the end of the pouch doesn't rest in an uncomfortable position.  Most people prefer an opaque pouch material or color, one you can't see through.   Also available are pouch covers or "necessities" which are actually underwear to conceal

the pouch, and prevent it from adhering to your skin or causing perspiration underneath it.  Some people swear by pouch covers.   Others have no use for them.  Take the time and trouble to find what is most comfortable for you. 

 

Some people like to wear closed end pouches.   These are closed off at the bottom and are usually disposed of when half full.    Closed pouches may be supplemented with liners which reduce the cost of using them.   Some find it convenient to wear a disposable pouch or mini pouch for special occasions or intimate moments.  Unless you have good control of a colostomy via irrigation, a mini pouch is designed for short term use, e.g.. for swimming, sexual relations or working out in the gym. A new development has taken place over the last few years.    More and more people are using the smaller pouches on a regular, daily basis.    They have a sporty look to them, and are less intrusive to wear. 

 

Can I switch appliances?

 

A two piece system is available.  These enable you to change the type of pouch you are wearing without removing the adhesive each time.  You would also be able to see the health of your stoma more easily.  In addition, a two piece ostomy appliance utilizes a small flange that protrudes from the barrier.  This helps protect the stoma from being smashed too much.  Remember, you want to select equipment that best fits into your lifestyle.   You want it to be compatible with your activities.    Some people use one and two piece system.  They change between these because of different activities in which they are engaged, or just for something different.  In fact some people even change between manufacturer to keep the peristomal skin from becoming allergic to one brand.   In  addition, if you are able to use more than one system, you are not as dependent on a particular manufacturer making your particular system.  They do change product lines ever so often.  You want to anticipate this.

 

Do I need a support belt?

 

Any abdominal surgery cuts through abdominal muscles and may weaken them.   Peristomal surgical support belts are available in different widths to accommodate different needs.  Some people like to wear a support belt for physical activity such as bowling, gardening, working out in the gym or performing physical labor on the job.  Such a belt can help prevent complications, provide support for a peristomal hernia, or provide abdominal support just for comfort.  Support belts come in 1-, 3-, 4-, 6- or 9-inch widths.  They are elastic, fasten with Velcro, and have an opening cut to fit around the ostomy pouch.   Most ostomates do no wear belts anymore.   They are still made for special situations and needs.   Discuss this with your ET.   She will be able to help you determine if a support belt will be of benefit.

 

Peristomal hernias

 

A few words about peristomal hernias.  Developing a hernia around the stoma is a common complication because of the necessary weakening of the abdominal muscle.  This occurs when the surgeon cuts these muscles during surgery.  Even with the newer laproscopic procedures, the stomach muscles are weakened.   The area particularly vulnerable is where the surgeon pulls the intestine through the abdominal wall.  Such a hernia is characterized by a large bulging around the stoma.   If in doubt about whether you've developed a hernia, check with your doctor or ET nurse.   Remember, after any type of surgery, the best way to avoid complications is to exercise.  When you are able, begin walking two or three times a day.  Start out slowly under the advise of your doctor.    Gradually build up the distance you walk.  Six to nine months after surgery, start other abdominal, arm, leg and body muscle building exercises.   Never stain yourself.    You will not only gain strength, look good and feel healthy, but you will reduce the risk of hernias.    Muscles repair faster and better than fat does.  There are health professionals to advise you in this area.  Use their help.  This is a very important issue.  Many problems are caused from lack of physical activity.   Eliminate them… exercise.

 

Stomal prolapse

 

Another complication is a prolapsed stoma.   This happens when the stoma keep protruding more and more from the abdominal wall.   It looks like it is actually growing.   It is falling out of the body.   It does not hurt because the stoma has no feeling.   It is harder to manage because the pouch must be maneuvered more carefully to be applied.   As with a peristomal  hernia, a prolapse can be cured only by surgery.   It may be contained where additional  damage is slowed and is less uncomfortable by wearing a peristomal support bell.   Usually, wearing such a belt does increase your comfort.   The surgery requires the doctor repair the tissue around the stoma and to rebuild it.   This sometimes is able to be done at the same site.   Very often, the stoma must be moved to the other side, lower, or in extreme cases, higher.    There are stoma almost to the rib cage.    These are very difficult to manage.   

 

Summary

 

It is test of character.  Having an ostomy in not easy, yet it is not really hard.  The most difficult part of the surgery is psychological adjustment.  If you are able to muster the strength of character to accept your body, then you will have the best attitude to attack the physical issues with more success.  Be happy.  You've been given a new life.

 

Life as an Ostomate

--Vancouver Ostomy Highlife

 

Will you bulge? 

No.  Actually, without a part of the intestine or bladder, and its contents, you should have a flatter tummy than before.  You can expect to wear, with little exception, what you wore before—and this includes tight clothing and bathing suits.

 

Will you smell?

No! Those with ileostomies and urinary diversions will be fitted for appliances which are completely odor-proof.  Colostomates can control odor with diet.  Or, just like ileostomates, use an odor-barrier type ostomy appliance—like virtually all that are now sold.

 

In addition, for all ostomates there are deodorants for external use and odor-reducing compounds to be taken by mouth, should they be needed.  I have never met a smelly ostomate.

Will you make noises?

 

Everyone produces gas.  Normal people release gas about 15-20 times a day.  Air-swallowers produce even more..  But you don't make noises so often that you can't pretend that your stomach is growling.  Be the fastest elbow in the West, or wear a two-way stretch binder, girdle or pantyhose to muffle the sound when it is audible.  Avoid skipping meals, gassy foods, drinking through a straw and chewing gum.

 

Will you feel the waste discharge?

Sometimes, very little.  The intestines have no feeling, but fecal ostomates will on occasion feel the peristomal skin move because of peristalsis.  Colostomates usually are aware of intestinal movement when it happens. 

 

Those with urinary diversions probably will be unaware of kidney discharge.  The ileostomate or urinary diversion should check his/her appliance occasionally to see if it is full, or he/she might find his/her pouch sagging—like a cow in udder misery needs to be milked.

Will you be a captive of the toilet?

 

At first you may find yourself spending more time than usual in the bathroom.  Soon you will become efficient with the management of your stoma.  Then your routine will not involve any more time than normal bathroom visits, except for the few minutes used in changing the appliance or irrigating.  Plus, there are a great many manufacturers inventing better equipment every year.  Make sure you stay informed about the state-of-the-art in ostomy care.

 

Will you starve?

No.  In fact, make sure you don't get too fat.  Follow you doctor's orders at each stage of your adjustment.  Some ostomates will be able to eat and tolerate just about anything.  Others may find difficulty with some foods.  Each person is so individual in his/her tolerance of foods that he/she must determine what is best by trial and error.  All ostomates must drink plenty of the proper fluids.

Will you be a social outcast?

 

No.  I have never met any outcast ostomates and don't know anyone who has.  Why would you be the first one?  If you don't smell bad, bulge, make rude noises and dwell in the toilet, what is to make you obvious and repulsive?  Only your own attitude—your morale—will affect your companions.  No cheerful, brave and triumphant person will be an outcast just because of an ostomy.  

    

Drugs and the Senior

--Town Karaya

 

Changes in the body caused by age or disease make seniors three times more likely to experience reactions to drugs than younger people.  Since many elderly often take medications for more than one condition, there is also the potential for drug interaction.  Taking medication without a clear understanding of what, when, how and why, often significantly reduces the effectiveness of the medication and may cause other problems.  Here are some actual statistics:

·        About 25% of all prescriptions are written for patients 65 years or older who also receive an average of 13 prescriptions drugs per year.

·        About 7% of the patients never get their prescription filled.

·        The cost of failure to take drugs properly is estimated to exceed $15,000,000,000 a year.

·        About 11% of all hospital admissions are related to failure to take drugs correctly, resulting in some 125,000 deaths annually; another 4% of the admissions are due to drug-induced toxicity.

·        About 15% of senior patients do not complete a full course of their prescribed drug therapy.

·        Studies have shown that better than 80% of the elderly take prescription and over-the-counter medications with little knowledge of dangerous effects or potential interactions.

·        About 23% of nursing home admissions result from the inability to manage medication use in the home environment.

·        Often elderly people suffer from speech defects or have hearing problems, are absent minded, or experience other problems attributed to aging which are really reactions to drugs.

 

Appeal Denied Medicare Claims

via—ConvaTec and Internet Sources

 

     In the majority of cases, Medicare claims are developed and processed without problems.  If the claim is denied or payment is reduced, you may have the right to an appeal.  In many instances of denial, the original claim should be reviewed for accuracy and completeness before proceeding with the appeals process.  You should know that:

 

·        There will be a letter notifying you of a denied Medicare claim, explaining the appeal process and what options you have to pursue.

·        If your claim for ostomy supplies is denied by Medicare, you have a right to appeal the claim whether or not the supplier had accepted assignment.

·        Only two percent of denied claims are appealed, but that 75% of those which are appealed are successful.

·        Appeals may be submitted by your supplier or by a representative you designate.

·        Based on DMERC Supplier Manuals, there are five levels in the Medicare appeals process.

 

The following is the information you will need to appeal a denied claim:

·        A brief statement explaining why you are requesting a review of the claim.

·        A copy of the claim and its remittance notice.

·        You and your supplier's Medicare number.

·        Letters from your doctor or ET nurse; or information from your medical records not previously provided.  There should clearly document your medical need for the ostomy supplies which have been ordered by your doctor and for which the claim is question was submitted.

 

There are publications available to you from AARP to assist you with reimbursement issues:  When Your Medicare Bill Doesn't Seem Right, and How to Appeal Medicare Part B. 

 

Things People Tell Pharmacists…

--Hope Health Letter

 

·        What do you mean there's no more refills?  This is a forever prescription.

·        I know I'm late getting this prescription refilled, but I figured that if I took my pills every other day, they would last longer.

·        I know I just got this prescription the other day, but I need more because my cousin has the same problem.

·        I can't take generic drugs.  I tried generic potato chips once and they were just awful.

·        I got these pills back in 1975.  What are they for—just in case I need to take the rest of them?

·        Did you have to go to school to get this job?

·        I was seen at the Mayo Clinic for two years, and they couldn't find out what was wrong with me.  What do you think it is?

·        My doctor switched medications on me.  Can I return these leftover pills for credit?

 

Live Longer

--Orange Oasis

 

A new Haven University study reveals that social activities; e.g., playing bingo, cards, etc., increases one's life span by as much as 20 percent. 

 

In fact, playing these games are as good for senior citizens as exercise, according to the research.  "Social and productive activities that involve little or no enhancement of fitness lower the risk or mortality as much as fitness activities do", says Thomas Glass or Harvard University School of Public Health.

 

Socializing is good for your health because it reduces the effects of stress and boosts the body's immune system, researchers suggest.  What this means to you is that coming to our monthly General Meetings will help you live longer.  Please attend, we need you.

 

Making a Living

--Orange Oasis

 

Shortly before his retirement, Charles Hendrickson Brower, Chairman of the Board of Batten, Barton, Durstin and Osborn, circulated a memo to his staff which included these lessons learned during 43 years in business:

 

·        Honesty is not only the best policy, it is rare enough today to make you pleasantly conspicuous.

·        The expedient thing and the right thing are seldom the same thing.

·        The best way to receive credit is to try to give it away.

·        You cannot sink someone else's end of the boat and still keep your own end afloat.

·        If you get a big kick out of your job, others will bet a big kick out of working for you.

·        It is not important that you come to work early and work late.  The important thing is why?

·        Chicken Little acted before her research was complete.

·        A man of stature has no need for status.

·        Many people know how to make a good living.  Few know what to do with it when they have it made.

 

Ostomy Facts

 

·        There are about 500,000 people with ostomies at any one time in the U.S.

·        Ostomy surgery is increasing about 3% per year worldwide.

·        There are now more temporary ostomy surgeries being performed than permanent ones.

·        The most common flange size is 45 mm.

·        More people wear two-piece systems than one-piece.

·        Pouches have no expiration date, per se, depending on how they are stored.

·        Skin barriers should be stored in a cool, dry and dark place.

 

Over Diagnosis – Over Treatment

The Hidden Pitfalls of Cancer Screening

This article by Maryann Napoli, Associate Director, Center for Medical Consumers

 appeared in the April 2001 issue of American Journal of Nursing.

 

This year an estimated 182,800 women will be diagnosed with breast cancer, and about 40,800 will die of the disease.  Every time I come across that ubiquitous statistic, I  mentally add this missing one: And at least 32,000 women will be treated for a cancer that  never would have killed them.  The 32,000 figure represents over diagnosis, an under  appreciated byproduct of mammography screening.  In fact, over diagnosis is the risk of  any screening procedure. 

 

Subject a large group of symptom less people to mammography, computed tomographic  (CT) scanning, or a Pap smear, and then biopsy the tiny abnormalities identified by these tests identify--in many cases, the cells will look like cancer under the microscope.  But most would never have invaded other organs and become life-threatening, even if left untreated.  Widespread acceptance of mammography screening, for example, has caused a dramatic increase in the diagnosis of ductal carcinoma in situ, which usually shows up as micro calcifications on a mammogram.  Before the advent of mammography screening, this microscopic lesion within the milk duct was rarely seen beyond the autopsy table.  Shockingly, DCIS was routinely treated with radical mastectomy in the 1970s when mammography screening first became available.  Women were usually told by their

surgeons, "Be grateful your cancer was found early--your life is saved."

 

Providers now recognize that treating DCIS with a radical mastectomy was a form of therapeutic overkill. But over treatment and uncertainties persist, as most of these lesions are currently treated with lumpectomy plus radiation or simple mastectomy.  Research now indicates that about 80% of all DCIS will never become invasive even if left untreated.  Hence my 32,000 statistic, which represents 80% of the nearly 40,000 women diagnosed annually with DCIS. No test can accurately distinguish the DCIS that would become invasive; what's more, invasive is not necessarily synonymous with fatal.  For example, invasive breast cancer developed in a small percentage of women whose DCIS was treated either with excision plus radiation or excision alone in a large ongoing clinical trial.  Thus far, eight-year results from this trial show a breast cancer mortality rate of 1% in both groups.  This is the same rate of mortality shown in much longer follow-up studies of women whose DCIS had been treated with mastectomy in the past.  What's more, early detection of DCIS provides no advantage, according to 13-year follow-up results from the

Canadian National Breast Screening Study.  

 

Pick a body part--lung, prostate, cervix, thyroid--look hard enough, and you'll find a "precancerous" abnormality. But not always to the benefit of the patient. In the not-so-distant past, precancerous cervical lesions were almost always treated with a hysterectomy because it was assumed that all would eventually become malignant.  Now it is known that nine out of ten regress spontaneously. And widely publicized findings from a 1999 study showed increased lung cancer survival due to screening with the spiral CT scan.  But this study has yet to prove a reduced rate of lung cancer mortality--the ultimate test of screening's value. Some doctors caution against premature acceptance of lung scanning because it may lead to unnecessary lung surgery; furthermore, the increased survival might be artificially inflated by the inclusion of scan-detected cancers would have never become invasive.  

 

The PSA screening blood test for prostate cancer may be causing more harm than good. The majority of men diagnosed as result have the type of early prostate cancer that is so slow-growing, the majority will die of other causes. Most are treated with either prostatectomy or radiation therapy, each with a substantial rate of impotence and incontinence.  

 

Cancer always kills, we are told, and early detection virtually guarantees cure.  Simplistic half-truths--many of them emanating from the American Cancer Society--are at odds with research showing cancer to be heterogeneous, encompassing a broad spectrum of diseases that includes everything from permanently noninvasive to rapidly fatal.

 

Screening does save lives, but at a far more modest rate than the public has been led to believe. Whenever you find yourself telling your patients to be screened, don't forget to give them the whole story.

 

Set in Your Ways?

By Sharon Williand, RNET, The Pouch

 

There is a risk in being set in you ways.  Sometimes it takes a catastrophe to shake us out of our complacency.  It is easy to fall into the "ostrich syndrome".  This is unfortunate, particularly when it comes to ostomy management.  It is only through education that individuals grow, learn and reach their fullest potential as ostomates.

 

While writing this column, I was reminded of several examples of individuals recently seen by our ET team.  One gentleman had a sigmoid colostomy performed many years ago and had developed a huge peristomal hernia.  He irrigated his colostomy daily and had been using what now classifies as an antique set.

 

The irrigator was a latex bag with no measuring guide to gauge the amount of solution being given.  There was a hard-rubber catheter with no shield present on the irrigator tubing.  He had been forcing the tubing in to its full twelve inch length.  He poked and poked until it finally went in!

 

All-in-all, it was a miracle that he had not perforated the herniated bowel.  He had not been successful with irrigations, continually losing as much water around the catheter as he was instilling.  It was difficult for him to accept an explanation of why he was flirting with danger.

 

After all, he had always done it that way.  Only after a great deal of persuasion was he agreeable to trying a new system which included a measuring guide on the irrigator and a cone in place of the catheter.

 

One elderly lady called the ET office in a state of panic.  She was no longer able to obtain the rubber pouches that she had been using for the past 25 years. 

 

She had been ordering these through the mail from a distant state.  She had no idea of any other pouch that could be substituted, and she also had no idea of what supplies were locally available.  She was totally amazed at the new light-weight, odor-proof pouches now on the market.

 

Choosing the Right System

By Gwen B. Tumbull, BS, ET, Ostomy Newsletter

 

For the healthcare professional who is caring for a person who has just undergone ostomy surgery, the biggest challenge is selecting an appropriate ostomy pouching system.  As an ET nurse with 18 years of experience, I can honestly tell you that I really don't know which pouching system is right for a person.

 

Oh yes, I know what type of barrier is indicated for various types of output, and whether additional skin protection should be provided by utilizing skin barrier pastes, powders or strips.  But only you—the person with the colostomy, ileostomy or urostomy—know for sure what ostomy system is right for your needs.

 

Why do I say this?  Because my years of experience have shown me that the right pouch for the patient is the pouch the patient says is the right pouch.  After all, living day-in-and-day-out with a pouching system is the only true test of how the system affects a person's daily life. 

 

There are many options and factors to be considered.  For example, a person whose output is frequent may prefer a pouch that can be emptied without being removed from the abdomen.  On the other hand, people with irrigating colostomies, who are able to regulate their bowel movements by giving themselves an enema through the stoma, may need only a security pouch, or even a gauze pad. 

 

The key questions that must be answered are:  Does it help him/her feel secure when wearing a particular pouching system?  Does it help him/her feel confident when interacting with family, friends and co-workers?  Does the way the pouch appears on the body or under clothing positively or negatively affect how one feels regarding sexuality?

 

IBS Survey

         

     A new survey of 1,000 adults shows Americans are not aware of the widespread presence of irritable bowel syndrome (IBS).  IBS affects up to 20 percent of all Americans, but only 1.2 per-cent of people in the survey knew that IBS is more prevalent in the United States than depression, asthma, diabetes or coronary heart disease.  IBS is a leading cause of school and work absenteeism, second only to the common cold. 

     IBS is characterized by abdominal pain, or discomfort, bloating and altered bowel movement, such as constipation or diarrhea.  The survey was sponsored by Novartis, maker of an investigational drug, Zelnorm, for treatment of IBS.

 

Quality of Life Study

Researched By Jane Michnik

 

     Quality of life is retained after rectal cancer surgery.  A new study shows patients undergoing rectal cancer surgery can have a good to excellent quality of life after the operation.

     While long-term survival is the key goal of any cancer surgery, the qualify of life of the patient is important as well. "Surgeons want to preserve bowel function and avoid creating a permanent colostomy, but not at the expense of adversely affecting patients' quality of life," said Dr. Kirk Ludwig, an assistant professor of surgery at Duke University Medical Center in Durham, N.C.

     The findings, presented at the 2002 Annual Clinical Congress of the American College of Surgeons in San Francisco, show the vast majority of patients have good to excellent quality of life after surgery for rectal cancer.  Quality of life scores were similar whether patients underwent a procedure that creates a permanent colostomy after surgically removing rectal cancer or one that avoids a colostomy by preserving the anal sphincter and restoring the continuity of the gastrointestinal tract.

     There are some 50,000 newly diagnosed cases of rectal cancer annually in the United States.  Treatment has evolved over the last 50 years. "There was a time in the middle part of the last century when it was a feat to get someone through an operation for rectal cancer," Ludwig said.  "The focus of treatment at that time became optimizing oncologic outcomes.  More recently, optimizing function and quality of life have become major issues."

 

What to do if you lose your wallet

By Jane Michnik

 

     We've all heard horror stories about fraud that's committed using your name, address, social security number, credit cards, etc.

     Unfortunately, I have firsthand knowledge, because my wallet was stolen last month and within a week the thieves ordered an expensive monthly cell phone package, applied for a Visa credit card, had a credit line approved to buy a Gateway computer, received a PIN number from the DMV to change my driving record information on-line, and more.

     But here's some critical information to limit the damage in case this happens to you or someone you know.  As everyone always advises, cancel your credit cards immediately, but the key is having the toll free numbers and your card numbers handy so you know who to call.  Keep those where you can find them easily (having to hunt for them is additional stress you won't need at that point). 

     Make a list today of all you credit card accounts and telephone numbers to reach them.  File a police report immediately in the  jurisdiction where it was stolen, this proves to credit providers you were diligent, and is a first step toward an investigation…if there ever is one.

     But here's what is perhaps most important: Call the three national credit reporting organizations—listed below—immediately to place a fraud alert on you name and social security number.  I had never heard of doing that until advised by a bank that called to tell me an application for credit was made over the Internet in my name.

     The alert means any company that checks your credit knows your information was stolen and they have to contact you by phone to authorize new credit.  By the time I was advised to do this almost two weeks after the theft—all the damage had been done—there were records of all the credit checks initiated by the thieves' purchases, none of which I knew about before placing the alert.

     Since then, no additional damage has been done, and the thieves threw my wallet away this weekend—someone turned it in. It seems to have stopped them in their tracks. The numbers of the credit reporting agencies are:

 

·        Equifax 1-800 525-6285

·        Experian (formerly TRW) 1-888-397-3742

·        Trans Union 1-800-680-7289

 

Social Security Administration also has a fraud line at 1-800-269-0271.  Pass this information along…it could help someone else.

 

Blood Pressure

--The Johns Hopkins Medical Letter

 

     Physicians in the past diagnosed high blood pressure (BP) based on diastolic pressure.  The bottom number in a BP finding—the diastolic value—is the pressure in the arteries as the heart relaxes between beats.  Elevated diastolic BP is strongly associated with increased risk of death from heart disease and stroke.  However, beginning at around age 60, diastolic BP often begins to plateau and may even decline.  Simultaneously, systolic BP often starts to rise.  The top number in a finding—the systolic value—is the pressure of the blood in the arteries when the heart contracts.  BP is expressed as millimeters of mercury (mmHg).

     Until recently, rising systolic BP was considered normal.  But research shows that systolic elevations are strongly linked with death from stroke, heart attack, congestive heart failure, or kidney failure—even when diastolic BP is relatively low.  The phenomenon is so widespread that it is recognized as a bona fide medical condition known as isolated systolic hypertension (ISH). 

     About 5% of adults develop ISH by age 60, and about a quarter of those in their 80's have it.  Recognition of the importance of ISH began to emerge in 1991 with completion of the landmark Systolic Hypertension in the Elderly Program. 

     When researches used low-dose diuretic medications to control ISH in more than 4,500 elderly patients, the incidence of stroke dropped 35% and the risk of heart failure was cut in half.  For subjects who had experienced a heart attack before entering the study, heart failure risk fell by 80%.  Other research has borne out these results—notably, a study of 3,600 hypertensive patients published in the journal Hypertension.

     ISH is diagnosed based on established categories similar to those used when both diastolic and systolic values are elevated (stages 1, 2 and 3 hypertension).  Like all types of hypertension, ISH should be treated more aggressively when coronary heart disease (CHD) or CHD risk factors—smoking, high cholesterol, diabetes, or a family history of early CHD—are present.  Age is also a factor—more aggressive treatment is required for men after age 60 and for women after menopause.

     Treatment usually begins with diuretics such as hydro-chlorothiazide (Hydrodiuril) and ferosemide (Lasix).  Other medications that may be considered include:

Beta-blockers, which are often used for people who have had a heart attack, as well as for stage 2 and stage 3 hypertension;

·  Angiotensin-converting enzyme (ACE) inhibitors, which are especially appropriate for patients who also have diabetes or heart failure, and often for those who have had a heart attack;

·  Angiotenin II receptor blockers, which can be used if ACE inhibitors have to be discontinued because of a dry cough or other side effects:

·  Long-lasting calcium channel blockers, which are often particularly effective for ISH—short-acting formulations can cause heart damage and should not be used.

 

   Most people who require drug therapy can be managed with one medication, but about 40% need combination treatment.  Lifestyle measures—not smoking, limiting alcohol consumption, exercising, maintaining a healthy diet and losing weight—are also important.

 

A Blueprint for Treatment

 

     Optimal blood pressure is 120/80 mmHg or below.  Though values of around 130/85 are still considered normal, they are classified as "high normal" and should not be ignored.  ISH is diagnosed when systolic findings are consistently 140 or above and diastolic findings are consistently below 90. 

     Isolated systolic values between 140 and 159 are considered mild to moderate; values over 160 are considered moderate to severe.  Treatment should be guided by the following criteria, established by the Joint National Committee on Prevention, Evaluation and Treatment of High Blood Pressure for state 1 (140-159/90-99), stage 2 (160-179/100-109), and stage 3 (180/110 and above) hypertension.  When systolic and diastolic values fall into different categories, the higher finding should generally guide treatment.

 

Diet Affects Prostate Cancer

 

Fred Hutchinson Cancer Research Center researchers have found high fat and high calcium consumption may fuel prostate cancer from a localized to an advanced disease.  Researchers examined intake of calories, fat, calcium and vitamin D among 1,200 Seattle-area men ages 40 to 64.  More than 60 percent of the participants were under age 60.  Half of the men recently had been diagnosed with prostate cancer while the rest were cancer free.

     Researchers found the men whose fat intake accounted for no more than 30 percent of their daily calories had half the risk of late-stage cancer than men who consumed more fat. There were no associations of fat intake with early-stage disease, however.  The researchers also found the risk of advanced prostate cancer was 112 percent higher among men who consumed the most calcium—more than 1,200 milligrams per day, equivalent to four or more glasses of milk—compared to those who got fewer than 500 mg. It did not matter whether the calcium came from food or supplements, researchers said.

 

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